experts in action

Porphyria Experts in Action

The United Porphyrias Association is proud to work closely with the porphyria experts on the UPA's Scientific Advisory Board and at the Porphyrias Consortium. 

We're pleased to introduce our Experts in Action where we'll feature:

  • Summing UP: Easy-to-understand summaries of recent and important scientific research
  • What's UP Doc? Where the experts answer your questions
  • Meet your experts and advocates: Where we get to know the people who are changing the world for porphyria
  • Special events and recordings
  • New research opportunities
  • And more....

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Experts in Action - Meet Dr. Manisha Balwani Medical Geneticist at the Icahn School of Medicine at Mount Sinai in New York.
Meet Dr. Manisha Balwani
August 24, 2023

"Seeing patients and how it impacts them day-to-day, and how their families' lives are impacted, it’s a different level of understanding."