experts in action

What's UP Doc? Panhematin History

  • Oct 28, 2022
  • Acute Porphyrias, What's UP Doc
  • Dr. Herbert Bonkovsky


What's UP Doc? Is a monthly column where we feature a patient question along with a response from a member of the UPA Scientific Advisory Board.

Do you have a question you would like to ask a Porphyria Expert?  Send us an email at We’d love to hear from you!

I have been treated with Panhematin for many years – and I’m interested in learning about how Panhematin was first used. Can you share that history with me and others?

To respond to this question, we turned to Dr. Herbert Bonkovsky (Atrium Wake Forest Baptist Health, Winston-Salem, NC), who was the physician that first used Panhematin in a patient with Acute Intermittent Porphyria. UPA was able to record Dr. Bonkovsky’s recollection of the patient and the experience. Enjoy this video response!


To read more about Dr. Bonkovsky click here.

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Meet Dr. Herbert Bonkovsky

"With rare diseases, you could call every patient a clinical trial of one because each one is unique. It is important to listen to them and try to address their symptoms."