Join the United Porphyrias Association for Porphyria Awareness Week 2022!
Porphyria Awareness Week is an opportunity to raise awareness to patients, healthcare professionals and the general public about the impact of porphyria!
PORPHYRIA TOGETHER is an international campaign that the whole porphyria community can join.
GEAR UP for Porphyria Awareness Week 2022
Visit the United Porphyrias online store to order hoodies, shirts, and hats – shipped directly to you!
Order items today for delivery in time for awareness week.
Have design or product ideas? Send them to email@example.com.
PORPHYRIA AWARENESS WEEK TOOL KIT
This Porphyria Awareness Week toolkit includes the theme, logos, printable materials, and social media banners and sample posts.
Friday, April 8th is PURPLE FOR PORPHYRIA Day! Be sure to wear and share your purple gear!
“Two of Me” Documentary
These social media links contain posts for each platform. Click on each platform to access them
You can print or share the materials below and share with your community!
With the appreciated support of