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Porphyria Awareness Week 2022

 

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Join the United Porphyrias Association for Porphyria Awareness Week 2022!

Porphyria Awareness Week is an opportunity to raise awareness to patients, healthcare professionals and the general public about the impact of porphyria!

PORPHYRIA TOGETHER is an international campaign that the whole porphyria community can join.

GEAR UP for Porphyria Awareness Week 2022

Visit the United Porphyrias online store to order hoodies, shirts, and hats – shipped directly to you!
Order items today for delivery in time for awareness week.

Have design or product ideas? Send them to info@porphyria.org.

Shirt
Shirt

 

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PORPHYRIA AWARENESS WEEK TOOL KIT

This Porphyria Awareness Week toolkit includes the theme, logos, printable materials, and social media banners and sample posts.

Friday, April 8th is PURPLE FOR PORPHYRIA Day! Be sure to wear and share your purple gear!

 

“Two of Me” Documentary

Interested in hosting a screening of the documentary to help raise awareness and fundraise?
Watch here: Two of Me: Living with Porphyria | Pinpoint AHP®
Download your discussion guide here

 

Tool Kit

Toolkit
Toolkit

 

Logos

Shirt

 

Social Media:
These social media links contain posts for each platform. Click on each platform to access them

Facebook
Instagram
Twitter
Linked In

 

Printable Media:
You can print or share the materials below and share with your community!

Poster
One-sheeter
Purple for Porphyria Card
Sign for selfies/photos

 

With the appreciated support of

mtpg