UPA Board of Directors
Our Directors are committed and enthusiastic volunteers who provide governance, oversight and directions to the UPA. Their personal and professional lives have been impacted by porphyria and rare disease advocacy, and they bring a diverse range of experiences and expertise to our organization.
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Andrew L. Turrell, Chair
New York, NY
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Hon. Joseph Crowley
Washington, DC
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Robert J. Desnick, PhD, MD
Palm Beach, FL
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Ariel Lager, JD
Philadelphia, PA
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Hetanshi Naik, PhD, MS, CGC
Palo Alto, CA
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Shawn Willis
Burlington, NC
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Karl Anderson, MD
Chair, Scientific Advisory Board
Ex-officio -
Lina Rebeiz
Chair, UPA President’s Council
Ex-officio