UPA is proud to partner with Porphyria News.
Porphyria News is a Bionews site, and provides clear, reliable news, research updates, and real-world perspectives to help people living with porphyria and their caregivers feel more informed, confident, and supported throughout their care journey.
Check out their curated a selection of trusted and relevant top news stories for the Porphyria community and columns from porphyria community members. Information is not meant to replace or provide medical advice.
Get Connected
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Get your questions answered
Our Patient Navigator can help you find porphyria specialist, access testing and treatments, and get your porphyria questions answered.
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Find others who know what it's like
Connect regularly with small group of your peers! Groups are created around diagnosis and particular experiences/needs.
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Talk one-on-one
Connect with a UPA Ambassador who understands what you're going through, because they've been there too.