Back to All Events

Porphyria Palooza 2026!


  • Crowne Plaza Kansas City Downtown 1301 Wyandotte Street Kansas City, MO, 64105 United States (map)

You’re Invited to a Porphamily Reunion!

Join us for a weekend of fun and connection in Kansas City, MO from October 9-11, 2026.

Porphyria Palooza is a weekend dedicated to the porphyria community. With an agenda and programming created by porphyria patients and caregivers, this event is all about bringing the community together for weekend of connection, learning, and fun in a supportive, porphyria-safe environment.

Travel support available. Learn more here.

We can’t wait to see you there!

Previous
Previous
May 19

Reflection & Prayer Connect UP