Join Us for Our "Porphamily" Event
at the International Porphyrias Symposium 2025!
You're invited to Arlington, VA on October 11-12, 2025 for a Patient and Family Conference focused on connection, celebration and science!
The United Porphyrias Association invites you to the Patient & Family Conference at the International Porphyrias Symposium, a special gathering dedicated to the Porphyria community- organized by the UPA President’s Council of patients and families.
This event will take place alongside the International Porphyrias Symposium scientific conference, offering a unique opportunity for patients and families to connect, learn, and engage in important discussions about porphyria research, treatments, and advocacy.
Set against the backdrop of beautiful Washington, DC, at the Arlington Westin, our "Porphamily" event is designed to foster connection, education, and enjoyment in a supportive, porphyria-safe environment.
Travel support available! Learn more here.
