Join us for an inspiring weekend in Cleveland, OH dedicated to our CEP community—a place where every journey is understood, and no one walks alone. Building on the momentum from the FDA CEP Patient Meeting in Bethesda this past fall, we are honored to invite you to the CEP: Living Stronger Together Weekend.

This special event brings together CEP patients, caregivers, and families to connect, share experiences, learn, and find support. We are thrilled to have Megan and Kristina from the United Porphyrias Association President’s Council helping to plan this meaningful gathering.

Contact us directly at info@porphyria.org to learn more!

Join us online!

Members of the CEP community who cannot attend in person are invited to a special online gathering on Saturday, February 14 at 2:30 PM ET. Please complete the form below to receive the link: