Dr. Bruce Wang joined us to answer questions directly from the porphyria community.

In this recording:

• AIP: Pain when I exercise — should I push through, or could I be causing nerve damage?

• On Givlaari: Can creatine supplements affect urine ALA/PBG-to-creatinine results?

• On gabapentin for 10 years: Should I lower it and add an opioid?

• Why do I get headaches after Panhematin in the US but not with heme in Germany?

• Negative genetic test but high urine PBG: Could it still be porphyria?

• Is PBG testing more accurate in blood or urine?

• PBG of 56 + positive VP genetic test, but my doctor says PCT: What should I do?

• Birth control, hormones & AIP attacks: What’s safe?

• Is progesterone cream safer?

• Can certain foods trigger attacks?

• Does carb loading help prevent attacks?

• Would a hysterectomy help prevent AIP attacks?

• How can I get a medication reviewed for the porphyria drugs database?

Join the Porphyria Together Facebook Page to participate in future live streams.