Patient Day Feature: Power Study Findings with Dr. Rebecca Karp Leaf
Nov 7, 2023
Acute Porphyrias, Recordings
Going beyond acute attacks, the worldwide POWER study looked at the impact of acute hepatic porphyrias on quality of life.
Watch Dr. Rebecca Karp Leaf presentation about the study's findings. From chronic pain, impacts on mental health, limitations to employment, this study captures the realities of living with porphyria from patients around the world.