New Handout! Guidance for Genetic Carriers of AIP, VP or HCP

If you or a family member has been diagnosed through genetic testing with acute intermittent porphyria (AIP), variegate porphyria (VP), or hereditary coproporphyria (HCP), but do not currently have symptoms, this new handout is for you.

 The handout explains important next steps, what your healthcare providers should know, and precautions that may help reduce the risk of future symptoms or an acute attack. Even without symptoms, understanding your diagnosis can help you make informed decisions about medications, medical care, and other potential triggers.