Connect with Others

You are not alone!

Connecting with others who understand what you're going through is a great way to build a support system and community.

Connect Up are small group meetings for patients and caregivers to connect and socialize with others in a safe and inclusive environment. Connect UP groups are peer-led and offered regularly over Zoom. 

Next meetings:

• Acute Hepatic Porphyrias (AIP, HCP & VP): August 29 at 7 pm ET
• EPP Parents: September 4 at 7pm ET
• EPP Adults: September 8 at 3 pm ET

Additional groups for other types of porphyria are available! New groups are formed based on interests and experiences.

Want to connect? Please fill out the form to be matched with a group!