Porphyria Centers in the U.S.

Here at the United Porphyrias Association, we collaborate continuously with a network of porphyria experts that are active members of the UPA Scientific Advisory Board and the Porphyrias Consortium. Porphyria experts often require a diagnosis prior to accepting and scheduling a new patient.

Each of these centers will be able to engage you in current and emerging research studies and clinical trials!

Please contact the UPA at 800-868-1292 or info@porphyria.org to learn about our Porphyria Centers and Satellite centers to be connected with potential doctors in your area; get help educating a current physician; or arrange a peer-to-peer consult between your physician and a porphyria specialist.

The following list has been created to assist porphyria patients in locating Porphyria Experts nearest to their area.

**Please note that we are unable to validate level of expertise, accepted insurance forms, or appointment availability of those outside of our Porphyrias Consortium and the UPA Scientific Advisory Board**