Here at the United Porphyrias Association, we collaborate continuously with a network of porphyria experts that are active members of the UPA Scientific Advisory Board and the Porphyrias Consortium. Porphyria experts often require a diagnosis prior to accepting and scheduling a new patient.
Each of these centers will be able to engage you in current and emerging research studies and clinical trials!
Please contact the UPA at 800-868-1292 or firstname.lastname@example.org to learn about our Porphyria Centers and Satellite centers to be connected with potential doctors in your area; get help educating a current physician; or arrange a peer-to-peer consult between your physician and a porphyria specialist.
The following list has been created to assist porphyria patients in locating Porphyria Experts nearest to their area.
San Francisco, CA
Los Angeles, CA
Kansas City, MO
New York, NY
Winston - Salem, NC
Salt Lake City, UT
**Please note that we are unable to validate level of expertise, accepted insurance forms, or appointment availability of those outside of our Porphyrias Consortium and the UPA Scientific Advisory Board**