Here at the United Porphyrias Association, we collaborate continuously with a network of porphyria experts that are active members of the UPA Scientific Advisory Board and the Porphyrias Consortium. Porphyria experts often require a diagnosis prior to accepting and scheduling a new patient.
Each of these centers will be able to engage you in current and emerging research studies and clinical trials!
Please contact the UPA to learn about our Porphyria Centers and Satellite centers. If you are not near a Porphyria Center, we can connect you with potential doctors in your area.
The following list has been created to assist porphyria patients in locating Porphyria Experts nearest to their area.
San Francisco, CA
Los Angeles, CA
Kansas City, MO
New York, NY
Winston - Salem, NC
Salt Lake City, UT
**Please note that we are unable to validate level of expertise, accepted insurance forms, or appointment availability of those outside of our Porphyrias Consortium and the UPA Scientific Advisory Board**