patient resources

Porphyria Centers in the U.S.

map

Consortium

Here at the United Porphyrias Association, we collaborate continuously with a network of porphyria experts that are active members of the UPA Scientific Advisory Board and the Porphyrias Consortium. Porphyria experts often require a diagnosis prior to accepting and scheduling a new patient.

Each of these centers will be able to engage you in current and emerging research studies and clinical trials!

Please contact the UPA to learn about our Porphyria Centers and Satellite centers. If you are not near a Porphyria Center, we can connect you with potential doctors in your area.

The following list has been created to assist porphyria patients in locating Porphyria Experts nearest to their area.

 

ALABAMA
Birmingham, AL
Montgomery, AL

ARIZONA
Phoenix, AZ

CALIFORNIA
San Francisco, CA
Los Angeles, CA

FLORIDA
Miami, FL

ILLINOIS
Chicago, IL

KENTUCKY
Lexington, KY

MASSACHUSETTS
Boston, MA

MINNESOTA
Minneapolis, MN

MISSOURI
Kansas City, MO

NEW YORK
New York, NY

NORTH CAROLINA
Huntersville, NC
Matthews, NC
Winston - Salem, NC

OHIO
Cleveland, OH

PENNSYLVANIA
Philadelphia, PA
Pittsburgh, PA

TEXAS
Galveston, TX
Houston, TX

UTAH
Salt Lake City, UT

WASHINGTON
Seattle, WA

 

**Please note that we are unable to validate level of expertise, accepted insurance forms, or appointment availability of those outside of our Porphyrias Consortium and the UPA Scientific Advisory Board**