We are sharing an opportunity for individuals living with erythropoietic protoporphyria (EPP) to provide feedback on a potential new oral medication for EPP.
A biotechnology company developing a treatment for EPP is conducting a survey to better understand how EPP impacts daily life and what patients value most in a potential medication. The survey takes approximately 30 minutes to complete. Participation is voluntary, and participants who choose to provide their contact information will receive a $10 gift card as a thank you for their time.
Your feedback can help inform the development of future treatment options for the EPP community. Thank you for participating!