Brendan M. McGuire, MD, MS

Written By United Porphyrias

UPA Scientific Advisory Board Member

Professor of Medicine
Medical Director of Liver Transplantation
University of Alabama at Birmingham
Birmingham, Alabama

 

Dr. McGuire answers your questions

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How many people have porphyria
How many people have porphyria

Question: I understand that Porphyria is a rare disease and being recently diagnosed with AIP, I am trying to understand more and more. How many people in the US have porphyria? Which type of porphyria is the most common? The least common? How do you calculate these numbers?

United Porphyrias
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