Katherine Cruz shares her journey to a Variegate Porphyria (VP) diagnosis after years of severe abdominal pain, painful reactions to sunlight, repeated ER visits, medical dismissal, and extensive testing. Today, she receives regular treatment and hopes continued research will create a better future for people living with porphyria.

Selenay lives with Variegate Porphyria (VP), a rare form of acute porphyria that can cause both neurological attacks and skin symptoms. Discover her journey through severe pain, ICU stays, delayed diagnosis, and finding strength and hope.