Your voice matters. The UPA Junior Ambassador Program invites young people ages 12–17 to make a meaningful impact for the porphyria community by helping to raise awareness, connect the porphyria community, build leadership skills, and contribute through service.

Help shape UPA’s priorities and guide our work into the future!

Help fellow porphyria patients and caregivers navigate their diagnosis and adjust to the realities of living with porphyria.

Join us in 2025 to make an impact in the life of children, youth and young adults facing with photosensitive conditions!