EPP & XLPers! Tell the FDA Commissioner about your experience

EPPCurrent
Written By United Porphyrias

Bitopertin for EPP and XLP was recently given a Commissioner's National Priority Voucher that can shorten the review time to 1-2 months. This is great news for our community and signals that EPP/XLP treatment is a national priority! Learn more here.

United Porphyrias Association wants to ensure that patients and caregivers' voice are considered in the review process. Please share your experiences with EPP/XLP in the form below.

United Porphyrias
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Congenital Erythropoietic Porphyria Voice of the Patient Report for the FDA