Advocacy Initiatives
Congenital Erythropoietic Porphyria Voice of the Patient Report for the FDA
If you or a loved one is impacted by CEP, anywhere in the world, we want to include your voice in this report.
EPP & XLPers! Tell the FDA Commissioner about your experience
Complete a short survey to ensure the FDA understands the patient experience of EPP/XLP with bitopertin.