GLOBAL
PORPHYRIA
DAY
On May 18 join the global porphyria community to raise awareness and understanding of porphyria!
As a rare disease, porphyria is often unheard of, unseen and misunderstood.
Global Porphyria Day is an annual day of awareness, where we come together as an international community to share our stories and advocate for greater understanding, timely diagnosis and a world free from the pain and challenges of porphyria.
Four ways you can raise awareness
for Global Porphyria Day
Participate in the International Porphyria Art Challenge
Raise awareness and deepen understanding of porphyria through creative expression!
You can participate by:
Submitting something you’ve created by May 17, 2026
Vote for your favorite pieces starting on Global Porphyria Day (May 18)
Share the gallery and encourage everyone to view and vote!
Open to community members anywhere in the world. $2,000 in prizes available!
Share Your #OneThingPorphyria
What is one thing you wish others understood about porphyria?
Help health professionals, friends, family, colleagues and classmates understand the realities of porphyria by sharing your #OneThing Porphyria.
Upload a video with the one thing you wish others understood
Video not your thing? Use a Canva template, pre-made graphic or printable sign to share your message.
Remember to tag @UnitedPorphyrias and use the hashtag #OneThingPorphyria!
Turn #Purple for Porphyria
On May 18th, join UPA and our porphyria friends from around the world to raise porphyria awareness by turning the world #PurpleforPorphyria!
Order and wear your free purple awareness ribbon. Sponsored by Disc Medicine.
Wear purple and encourage your friends to wear purple too!
Light or decorate your home in purple
Share your purple on social media with the hashtag #PurpleforPorphyria
Help spread the word about porphyria
Make sure our community’s voices are heard!
Like, comment on and share Global Porphyria Day posts that speak to you.
Check out the gallery below to see posts from others in the community.
Be sure to follow United Porphyrias to get all the latest!
Thank you to our Global Porphyria Day Sponsors
