Chronic symptoms such as pain, weakness, numbness, insomnia, and fatigue can take a significant toll on daily life for those living with acute hepatic porphyria (AIP, HCP, VP, ADP).
Join neurologist and porphyria expert Dr. Mohamed Kazamel (Mayo Clinic) for an informative webinar that will explore:
Why chronic porphyria symptoms occur
Current treatments that may help manage these symptoms
Practical strategies to cope day-to-day
Following Dr. Kazamel’s presentation and Q&A, you’ll have the opportunity to share your own experiences, tips, and strategies and to help highlight the areas where more research and resources are urgently needed.
Date: Wednesday, December 10, 2025
Time: 1:00-2:00PM ET (find your local time here)
Location: Zoom- register below for link