Meetings & Events
Light Protection and Porphyria
Recording Available! Join Dr. Amy Dickey and EPP Patient Ginger Gonsalves for a deep dive into protecting yourself from light when you have porphyria.
Treatment Options and Acute Hepatic Porphyrias
Recording Available! Join Dr. Sioban Keel for an informative webinar of treatment options for the acute hepatic porphyria (AIP, HCP and VP).
Reproductive Health and Acute Hepatic Porphyrias
Recording Available! Dr. Rebecca Karp Leaf dives into all things reproductive health and porphyria!
Nutrition and Lifestyle in Porphyria- Recording Available
Recording available! Nutritionist and AIP patient Isabel Palazon joined us to discuss lifestyle and nutrition strategies to help manage your porphyria!
Partner and Community Events
Discover GIVLAARI® (givosiran): A Treatment for Adults with Acute Hepatic Porphyria (AHP)
Join us for Discover GIVLAARI, an educational event, presented by an Alnylam Patient Education Liaison (PEL), that will help you better understand AHP and how GIVLAARI may help. Learn about how patients prescribed GIVLAARI get started and hear from a patient who is taking GIVLAARI.
April 26th, 2025
Host/PEL & Patient: Lara Hervias & Donna
12:30 – 2:30 PM ET
Saté (694 Town Center Drive, Newport News, VA 23606)
May 13th, 2025
Host/PEL & Patient: Kim Bischel & Hannah
6:00 – 8:00 PM CT
Ruth's Chris Steak House (620 West Pinhook Road, Lafayette, LA 70503)
June 21st, 2025
Host/PEL & Patient: Kim Bischel & Hannah
12:00 – 2:00 PM ET
Old Vinings Inn (3011 Paces Mill Road SE, Atlanta, GA 30339)
