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Q&A: Acute Hepatic Porphyrias Neuropathy and Pain

Back by popular demand!

Dr. Mohamed Kazamel (Mayo Clinic), neurologist and porphyria expert will be taking your questions on managing the chronic symptoms of acute porphyria (AIP, HCP, VP & ADP).

Gain practical insights into symptom management, neurological complications, and emerging care approaches, and connect with others who understand what you’re going through.

  • Date: Saturday, February 7, 2026

  • Time: 5:00 PM ET (find your local time)

  • Location: Zoom- register below for link

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January 25

Cutaneous Porphyrias Connect UP

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April 30

Sun Escape 2026