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Q&A: Acute Hepatic Porphyrias Neuropathy and Pain

Back by popular demand!

Dr. Mohamed Kazamel (Mayo Clinic), neurologist and porphyria expert took your questions on managing the chronic symptoms of acute porphyria (AIP, HCP, VP & ADP). Including:

  • Preventing neuropathy

  • Recommendations for managing chronic pain and dysautonomia symptoms

  • How neuropathy is tested

… and more!

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January 25

Cutaneous Porphyrias Connect UP

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February 7

CEP & HEP Connect UP