People with Acute Hepatic Porphyrias (AIP, HCP, VP, ADP) are often advised to check a “safe drug list,” but it isn't always clear how the lists are developed, how to find medications or what to do if a medication isn't listed.

 Porphyria expert Dr. Bruce Wang (UCSF) and patient advocate Nicolas Frias discuss the use and importance of drug safety databases for managing AHP .

This webinar includes:

• Why certain medications can trigger AHP attacks and why drug safety guidance matters

• The history of drug safety recommendations and why the NAPOS list is recommended

• How experts decide what is considered safe, unsafe, caution, or unknown

• How to use the database in daily life (including brand vs generic names and combination medicines)

• What to do if a drug is not listed, including working with your pharmacist and care team

Educational session only. Always confirm medication decisions with your healthcare team.