People with Acute Hepatic Porphyrias (AIP, HCP, VP, ADP) are often advised to check a “safe drug list,” but it isn't always clear how the lists are developed, how to find medications or what to do if a medication isn't listed.
Porphyria expert Dr. Bruce Wang (UCSF) and patient advocate Nicolas Frias discuss the use and importance of drug safety databases for managing AHP .
This webinar includes:
Why certain medications can trigger AHP attacks and why drug safety guidance matters
The history of drug safety recommendations and why the NAPOS list is recommended
How experts decide what is considered safe, unsafe, caution, or unknown
How to use the database in daily life (including brand vs generic names and combination medicines)
What to do if a drug is not listed, including working with your pharmacist and care team
Educational session only. Always confirm medication decisions with your healthcare team.
