Join us for an exclusive, live interview with Dr. Herbert Bonkovsky, the pioneering physician and researcher whose work has helped shape more than five decades of progress in porphyria research, diagnosis, and treatment. For decades, Dr. Bonkovsky has been a leading force in advancing rare disease research, helping patients understand and manage their porphyria.
Join us as we bring the community together for a unique opportunity to hear the stories behind these milestones and recognize Dr. Bonkovsky’s remarkable contributions to the porphyria field.
The webinar will explore:
Dr. Bonkovsky’s earliest experiences studying porphyria and heme metabolism
The story behind the first use of intravenous heme for an acute porphyria attack
How porphyria diagnosis, treatment, research, and patient care have evolved over more than 50 years
Lessons learned from decades of working alongside people living with porphyria
The questions and challenges that remain, and Dr. Bonkovsky’s hopes for the future of porphyria research
The Details
Date: Monday, July 27, 2026
Time: 11:00 AM–12:00 PM ET (find your local time here)
Location: Zoom- register below for link
The presentation will be recorded and available after the webinar.