Watch this exclusive, live interview with Dr. Herbert Bonkovsky, the pioneering physician and researcher whose work has helped shape more than five decades of progress in porphyria research, diagnosis, and treatment. For decades, Dr. Bonkovsky has been a leading force in advancing rare disease research, helping patients understand and manage their porphyria.

Hear the stories behind these milestones and recognize Dr. Bonkovsky’s remarkable contributions to the porphyria field.

• Dr. Bonkovsky’s earliest experiences studying porphyria and heme metabolism

• The story behind the first use of intravenous heme for an acute porphyria attack

• How porphyria diagnosis, treatment, research, and patient care have evolved over more than 50 years

• Lessons learned from decades of working alongside people living with porphyria

• The questions and challenges that remain, and Dr. Bonkovsky’s hopes for the future of porphyria research

The presentation will be recorded and available after the webinar.