Join the United Porphyrias Association and a panel of knowledgeable health care professionals for an in-depth look at porphyria, including:
Porphyria causes and triggers
Managing skin symptoms
Treating acute attacks
Liver health and complications
Patient stories
Resources to support you on your porphyria journey
Presentations and panels will cover all types of porphyria.
Patients, families and health care providers are welcome!
No cost to attend, but please register in advance.
The Details
Date: Saturday, June 27, 2026
Time: 10 am to 2 pm
Location: UT Southwestern, Dallas, TX
Address:
West Campus Building 3, Room 9.460
2001 Inwood Rd
Program Highlights
Acute Hepatic Porphyrias
Karl Anderson, MD
Skin Symptoms in Hepatic Porphyrias (PCT, HCP,& VP)
Kaveh Nezafati, MD
Cutaneous Porphyrias: Diagnosis, Treatment, Light Protection, and Daily Life
Stan Tolkachjov, MD
Liver Complications, Directed Treatment Options & Porphyria
Shannan Tuijos, MD
Patient Support for Porphyria
Beena Mathew, MSN
Educational Efforts & Awareness
Taha Bat, MD and Eileen Hu, MD