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UT Southwestern Porphyria Patient & Family Forum

Join the United Porphyrias Association and a panel of knowledgeable health care professionals for an in-depth look at porphyria, including:

  • Porphyria causes and triggers

  • Managing skin symptoms

  • Treating acute attacks

  • Liver health and complications

  • Patient stories

  • Resources to support you on your porphyria journey

Presentations and panels will cover all types of porphyria.

No cost to attend, but please register in advance.

The Details

 

Date: Saturday, June 27, 2026

Time: 10 am to 2 pm

Location: UT Southwestern, Dallas, TX

Address:
West Campus Building 3, Room 9.460
2001 Inwood Rd


Program Highlights

Acute Hepatic Porphyrias

Karl Anderson, MD

Blisters and Related Symptoms

Kaveh Nezafati, MD

Liver Complications, Directed Treatment Options & Porphyria

Shannan Tuijos, MD

Headshot Beena Mathew

Patient Support for Porphyria

Beena Mathew, MSN

Educational Efforts & Awareness

Taha Bat, MD and Eileen Hu, MD


Registration

 
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October 9

Porphyria Palooza 2026!