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Acute Porphyria Treatment Guidelines

Join UPA for a conversation about the new acute porphyria guidelines and what patients and families should know.

Porphyria experts Manisha Balwani,MD, MS of Mount Sinai and Hetanshi Naik,PhD of Stanford University will join the discussion to help explain why the guidelines matter, what they include, and how they may support better care for people living with acute hepatic porphyrias.

There will also be time for a Q&A: bring your questions!

  • Date: Thursday, June 25, 2026

  • Time: 6:00 PM-7:00PM ET (find your local time here)

  • Location: Zoom- register below for link

Educational session only. Always confirm medication decisions with your healthcare team.

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June 21

Men with Acute Porphyrias Connect UP

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June 27

UT Southwestern Porphyria Patient & Family Forum