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Join porphyria expert John Phillips, PhD and fellow patient Lina Rebeiz for a deep dive into the science of porphyria. We’ll be exploring topics like:
Why different types of porphyria have such different symptoms
What happens to samples when they are exposed to light
How the new treatments for porphyria work
Register below to get your questions answered!
Details:
Date: Saturday, June 21, 2025
Time: Noon to 1:00 PM ET (find your local time here)
Location: Zoom, register below for the link!