After the life-changing experience of the first Porphyria Palooza in September 2024, we’re excited to invite you to the Palooza Reunion- a fun-filled virtual gathering for the porphyria community where you can come together to connect, laugh and play!  

We’ll be taking the Porphyria Palooza reunion online for a virtual event, hosted by Porphyria advocate and AIP warrior Mayra Martinez, alongside the professional game master John Grindle from Grin Events who is known for turning virtual events into unforgettable experiences!  

What to expect:  

• A space to be yourself, relax, and enjoy quality time with your community. 

• Fun and interactive games such as: 
  🎯 Music and movie trivia 
  🧠 Word and phrase guessing 
  🎉Surprise challenges to keep everyone engaged and laughing 

• Laughter, good vibes, and that “porphamily” feeling you love.  

Whether you’ve been living with porphyria for years or just found your way to our community, this event is for YOU. It’s a chance to celebrate life, resilience, and the power of coming together - no matter where you are in the world.  

Bring your energy, your game face, and your smile. 
Let’s make memories together — Porphyria Palooza style. 

Date: Saturday, August 16
Time: 3:00 to 5:00 PM ET (find your local time here)
Location: Zoom- register below for link!