May 2026 Porphyria eNews

News
Written By United Porphyrias

In this issue:

  • New Resources for Acute Porphyrias:

    • Treatment recommendations

    • Drug safety database available in Spanish

  • Voting Now Open: Vote for your favorite Art Challenge pieces by June 1.

  • Porphyria Palooza Is Coming: Register for the event and apply for travel support today!

  • Global Porphyria Day Highlights: Your stories, Q&A with Dr. Wang and more

  • Patients for Bitopertin Update: Join our livestream on May 28

  • Attention Dallas,TX: Join us for a Porphyria Patient and Family Forum on June 27

  • Get Involved in Research: How do you use AI?

  • In the Community: UPA at Digestive Disease Week, on Capitol Hill and more!

  • Our Stories: Meet Cheyenne and Sabina

  • Connect UP with Your Community: New young AHP Connect UP and monthly meeting schedule

Read May eNews

Read past issues of UPA’s eNews here.

United Porphyrias
Next

Managing Acute Porphyrias: International Guidelines