June 2026 Porphyria eNews
In this issue:
Upcoming Events! Webinars on new AHP guidelines and EPP/XLP investigational treatment results, Patient Forum in Dallas, and Porphyria Palooza!
Art Challenge Winners Announced: Check out the top entries!
New Online Training for Health Professionals: Share with your care team.
Research Opportunities: Your participation makes a difference.
UPA in the Community: Speaking at the FDA
Partner Updates: APEX advocates for better testing, latest activities from UPA Latam.
Our Stories: Meet Camila and Hailey.
Connect UP with Your Community: find the groups for you!
Read past issues of UPA’s eNews here.