EPP & XLP, UPA Featured on the Lifetime Network!

A powerful new two-part feature of The Balancing Act’s Behind the Mystery on the Lifetime Network is bringing the realities of EPP and XLP into homes across the country.

Our UPA friends Ryan and Nichole Beier courageously share their family’s experience, giving viewers an honest look at the challenges, resilience, and hope behind life with EPP. Porphyria expert and UPA Scientific Advisory Board member, Dr. Angelika Erwin, provides important medical insight, while UPA highlights the support, resources, and community available to patients and families.

We are incredibly proud of Ryan and Nichole for using their voices to help others feel seen and understood. It is a meaningful opportunity to expand awareness, shorten the path to diagnosis, improve care, and show families everywhere that they are not alone.

Part 1

Meet Ryan and follow his decades-long journey to a diagnosis.

Part 2

Learn about the science of EPP and XLP, and organizations like UPA and Shadow Jumpers who are supporting patients.