September 2026 Porphyria eNews
In this issue:
Porphyria Merch: Get yours today!
Upcoming Events: Livestream with Dr. Wang, Porphyria Palooza, Denver Meet UP.
New Resources: Webinar recordings.
Participate in Research: Insurance experience and Pathway Clinical Trial.
Treatment Updates: Bitoperin expanded access.
UPA and Partner Updates: UPA on the Lifetime Network, Latin America connections and more!
Advocacy Update: What the FDA's New Strategic Plan means for porphyria.
Porphyria Voices: Back to school special.
Connect UP with Your Community: Find the group(s) for you!
Our Stories: Meet Lexi and Lara.
Past Issues
Porphyria Spotlight
More past issues of UPA’s eNews here.