In this issue:
Porphyria Palooza! Book now!
Upcoming Events: AHP Liver Health and Mental Health webinars.
New Resources: CEP Voice of Patient Report, webinar recordings.
EPP & XLP Treatment Updates: Dersimelagon ownership change and new bitopertin expanded access sites.
Participate in Research: EPP/XLP survey opportunity.
UPA and Partner Updates: UPA welcomes new board member, Junior Ambassadors and more!
Connect UP with Your Community: Find the group(s) for you!
Porphyria Voices: A story of love, strength and hope.
Our Stories: Meet Bennet and Milton.
Past Issues
Porphyria Spotlight
More past issues of UPA’s eNews here.