Meet the incredible people who live with porphyria

Meet Milton, ADP Warrior
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Meet Milton, ADP Warrior

Milton Cubas lives with ALAD Porphyria (ADP), one of the rarest forms of porphyria. After years of attacks and neuropathy, a liver transplant changed his life. Read his story.

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Your story has the power to:

  • Create a sense of belonging and mutual support within the porphyria community

  • Raise awareness and understanding of porphyria among healthcare providers and the public

  • Reduce feelings of isolation and challenge the stigma often associated with a porphyria diagnosis

  • Offer hope, guidance and inspiration who may be facing similar challenges

We’re here to support you in telling your story, in your own voice. Stories will be featured on UPA’s social media channels, website, and in our newsletter.

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