Meet the incredible people who live with porphyria

Meet Aida, CEP Warrior
Read Aida's powerful story of living with CEP in Iran. From wheelchair use to finding hope through art, her journey is one of resilience and strength. Discover how she turns pain into beauty.

Meet Maria, CEP Warrior
Meet Maria, a 6-year-old battling Congenital Erythropoietic Porphyria (CEP). Discover her story of resilience and the challenges of this rare disease that forces her to avoid sunlight.

Meet Elsie, CEP Warrior
Elsie has been living with congenital erythropoietic porphyria (CEP), a rare condition that makes her extremely sensitive to sunlight.