Meet the incredible people who live with porphyria
Meet Ghinwa, PCT Warrior
After years of misdiagnoses and medical gaslighting, Ghinwa was diagnosed with Porphyria Cutanea Tarda (PCT). Read her inspiring story of resilience, faith, and hope while living with a rare disease.
Meet Jennifer, Porphyria Warrior
Jennifer shares her journey living with porphyria and photosensitivity, and how photography became a source of healing, resilience, and connection. Her story explores adaptation, advocacy, creativity, and the power of support while living with a rare disease.