UPA eNews

UPA’s eNews is a monthly newsletter with the latest porphyria news, events, resources, research opportunities to get involved and more!

Check out the most recent issues below and sign up to receive the latest porphyria news in your inbox!

Porphyria Spotlight

Your October porphyria UPdates are here! Featuring treatment updates, new research opportunities and Palooza highlights!

Your September porphyria UPdates are here! Featuring new merch, events research opportunities and patients stories!

Your August porphyria UPdates are here! Featuring new webinars, research opportunities and patients stories!