UPA eNews

UPA’s eNews is a monthly newsletter with the latest porphyria news, events, resources, research opportunities to get involved and more!

Check out the most recent issues below and join us to

Porphyria Spotlight

July 2026 Porphyria eNews

Your July porphyria UPdates are here! Featuring new resources, events, patients voices and more!

June 2026 Porphyria eNews

Your June porphyria UPdates are here! Featuring new learning opportunities for patients and health care providers, partner updates and lots of opportunities to connect!

May 2026 Porphyria eNews

Your May porphyria UPdates are here! Featuring new AHP treatment guidelines, research opportunities, upcoming events and more.

UPA eNews

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