Spotlight Porphyria
Welcome to Spotlight Porphyria where we feature all things porphyria! Including:
Porphyria Voices shares experiences, insights, and advice from the porphyria community.
What's UP Doc? Where porphyria experts take your questions.
Summing UP explains the latest research in easy-to-understand summaries
Meet your experts and advocates where we meet the people changing the world for porphyria.
…and more!
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Meet Nate, Histiocytosis (HLH) Warrior & Advocate
In recognition of Rare Disease Week, we’re shining a light on Histiocytosis. After 12 years of misdiagnosis and 16 surgeries, Nate was finally diagnosed with Hemophagocytic Lymphohistiocytosis (HLH). A bone marrow transplant saved his life. Read his story.