Meet the incredible people who live with porphyria

Meet Craig, EPP Warrior
Discover Craig Leppert’s inspiring story of living with Erythropoietic Protoporphyria (EPP). From misdiagnoses to founding Shadow Jumpers, learn how he transformed challenges into advocacy.

Meet Victor, EPP Warrior
Discover Victor A. Mejías' inspiring story of resilience with EPP. Learn how he overcomes pain, isolation, and sunlight sensitivity every day—while mentoring others with hope and strength.

Meet Jennifer, EPP Warrior
Jennifer’s life took a dramatic turn in 2017 when her EPP worsened, making any kind of light intolerable and forcing her to live in near-total darkness.