Meet the incredible people who live with porphyria
Meet Batya, AHP warrior
After surviving breast cancer, Batya continued searching for answers to years of unexplained pain before finally being diagnosed with porphyria. Read her inspiring story of resilience, hope, and refusing to give up.
Meet Julie, HCP Warrior
Julie has Hereditary Coproporphyria (HCP), a rare genetic disorder that makes her the only diagnosed child under 12.