Meet the incredible people who live with porphyria
Meet Amanda, HCP Warrior
Amanda lived for years without symptoms of Hereditary Coproporphyria (HCP), enjoying the sun and an active family life in Florida. After a severe porphyria attack in 2024, she began experiencing recurring attacks, debilitating pain, neuropathy, and loss of independence. Discover her journey of living with acute hepatic porphyria, navigating treatment, and finding hope in small victories.
Meet Batya, AHP warrior
After surviving breast cancer, Batya continued searching for answers to years of unexplained pain before finally being diagnosed with porphyria. Read her inspiring story of resilience, hope, and refusing to give up.
Meet Julie, HCP Warrior
Julie has Hereditary Coproporphyria (HCP), a rare genetic disorder that makes her the only diagnosed child under 12.