Meet the incredible people who live with porphyria
Meet Maria Paula, AIP Warrior
Read Maria Paula's incredible porphyria story: from unexplained pain and paralysis to a triumphant recovery. Learn about her diagnosis, ICU stay, and path to healing.
Meet Sima, AIP Warrior
Read Sima’s powerful Acute Intermittent Porphyria (AIP) story. From misdiagnosis and paralysis to rehabilitation and hope, her journey is a testament to resilience.
Meet Estephany, AIP Warrior
Discover how Estephany Escarcena turned her porphyria diagnosis into a mission—founding UPA Latam to provide Spanish resources, community, and advocacy for underserved patients.
Meet Jagruti, AIP Warrior
Read Jagruti Sanghvi's powerful journey with Acute Intermittent Porphyria (AIP) - from misdiagnosis as a child to surviving a month-long coma at 13. Discover how she transformed her pain into purpose by co-founding the Indian Porphyria Association.
Meet Mariana, AIP Warrior
Mariana shares her powerful journey with Acute Intermittent Porphyria—a decade of pain, misdiagnosis, and finally, empowerment. Discover how she turned suffering into strength, founded Alas Púrpuras, and became a voice for porphyria awareness.