Meet Sneha, an 18-year-old from Punjab battling Variegate Porphyria. From delayed diagnosis to skin fragility and acute attacks, her story highlights the challenges of living with a rare disease. Learn about Porphyria and why awareness matters.

Claudia battled years of unexplained pain, paralysis, and misdiagnoses before discovering she had Variegate Porphyria and Hypokalemic Periodic Paralysis. Read her inspiring journey of advocacy, treatment, and hope.

After being diagnosed with Variegate Porphyria in 2009, Sean had to forgo the typical path of attending college or working a traditional 9-to-5 job. Despite this, he didn’t let his condition define him.