Meet the incredible people who live with porphyria

Meet Claudia, VP Warrior
Claudia battled years of unexplained pain, paralysis, and misdiagnoses before discovering she had Variegate Porphyria and Hypokalemic Periodic Paralysis. Read her inspiring journey of advocacy, treatment, and hope.

Meet Sean, VP Warrior
After being diagnosed with Variegate Porphyria in 2009, Sean had to forgo the typical path of attending college or working a traditional 9-to-5 job. Despite this, he didn’t let his condition define him.