get involved


UPA will exhibit at the American Academy of Dermatology Annual Meeting in New Orleans, LA MAR 17-20. This conference is a prime opportunity to engage with healthcare professionals. Advancing awareness, research and therapies are at the core of our mission!
(Photo above: UPA representatives at a scientific meeting in Nov 2022)

TUES APR 23 - 5 to 7:30PM ET

Join us for an in-person patient education meeting and gathering and LinkUP with Dr. Sean Rudnick, Porphyria Expert and member of UPA's Scientific Advisory Board. We'll be serving up food, friendship and answers to your porphyria questions. All are welcome! Please register in advance. Parking details to come. REGISTER HERE

You are not alone!

Connecting with others who understand what you're going through is a great way to build a support system and community. UPA is pleased to launch Connect Up small group meetings for patients and caregivers to connect and socialize with others in a safe and inclusive environment. Connect UP groups will be peer-led and offered regularly over Zoom. SIGN UP HERE.