get involved

Porphyria Awareness Day

 

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Global Porphyria Day was celebrated on Wednesday, April 19th. Help us to continue to build awareness and bring attention to porphyria.

 

HERE'S HOW YOU CAN PARTICIPATE

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SHARE YOUR #MYPORPHYRIA STORY

Customize your social media posts using Global Porphyria Day templates, sample posts and printable resources.

Learn more about how your and your organization can participate in this campaign in the Global Porphyria Day Toolkit!

 

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Read about the #myporphyria campaign in Porphyria News.

 

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WATCH & SHARE THE PREMIER GLOBAL PORPHYRIA AWARENESS VIDEO

Patients from across the world will be featured in a series of videos, where patients talk about their experiences in the #MyPorphyria campaign. The first of these videos launches today to kick off the #MyPorphyria campaign via GPAC’s new social media channels @GlobalPorphyria.

 

 

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GRAB YOUR PURPLE SWAG

Grab your purple gear or order some from our new online store and get ready to share porphyria information with your friends, family, doctors and workplaces.

 

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Visit our Store

 

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LEARN MORE ABOUT OUR NEW SOCIAL MEDIA CAMPAIGN

Read the UPA Global Porphyria Day Press Release that launches a new social media campaign designed to elevate awareness and understanding and to raise fund in support of the porphyria.

 

 


 

Donate now

 

Supported my Mitsubishi Tanabe.

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