Weekly | Join this weekly Connect UP for people living with Acute Hepatic Porphyria (AHP- includes AIP, HCP, VP & ADP). moderated by Mayra Martinez and Ginger Davis, both living with Acute Intermittent Porphyria (AIP), who bring lived experience, empathy, and care to every conversation.

Recording Available! Join trauma-informed trainer and facilitator, Julie Wells, to explore the connection between chronic illness and emotional well-being, with a focus on the unique challenges faced by people living with porphyria.

Recording available! Join porphyria expert Bruce Wang, MD to learn more about the connection between liver health and acute hepatic porphyrias (AIP, HCP, VP & ADP).

GondolaBio joined UPA to share details about the upcoming PATHWAY clinical trial for PORT-77, a new potential treatment for EPP & XLP.

Join us for an exclusive, live interview with Dr. Herbert Bonkovsky, the pioneering physician and researcher whose work has helped shape more than five decades of progress in porphyria research, diagnosis, and treatment.

Join the UPA and a panel of knowledgeable health care professionals to learn about your porphyria, treatment options, navigating care and more!

Join porphyria experts Dr. Manisha Balwani of Mount Sinai and Hetanshi Naik, for a conversation about the new acute porphyria guidelines and what patients and families should know.

Join Sean for a special Connect UP for those living with VP and HCP!

Monthly | For all those with a loved one with porphyria. Whether you are a parent, partner, sibling, child or friend, supporting a someone with porphyria can be hard. Connect with others who understand your journey.

Monthly | Join us for a special Connect Up centered on prayer, reflection, and spiritual support, led by Shawn Willis. This gathering offers a peaceful space to come together, share intentions, and find comfort in community. Whether you’d like to pray, listen, or simply be present, all are welcome.

Join us for Global Porphyria Day, a worldwide day of porphyria advocacy and awareness!

Monthly | You're invited to a special Connect Up for men living with Acute Hepatic Porphyria (AHP- includes AIP, HCP, VP & ADP), a supportive and confidential space created to connect with others who understand the unique challenges of living with AHP.

Monthly | For cutaneous porphyria patients and caregivers! Connect with others who understand what you’re going through. Hosted by Candace.

Special for Global Porphyria Day! Dr. Bruce Wang, porphyria expert, will be took your questions live on Facebook.

Join us for this special Connect UP for anyone who has experienced paralysis because of their acute hepatic porphyria.

Weekly | Join this weekly Connect UP for people living with Acute Hepatic Porphyria (AHP- includes AIP, HCP, VP & ADP). moderated by Mayra Martinez and Ginger Davis, both living with Acute Intermittent Porphyria (AIP), who bring lived experience, empathy, and care to every conversation.

Monthly | Join us for Sound & Restore, a gentle Connect Up session led by Scarlett Dias, designed to help you slow down, release tension, and reconnect with yourself. Through sound healing, Scarlett will guide you into a calming space where your mind and body can rest, reset, and restore.

Weekly | Join this weekly Connect UP for people living with Acute Hepatic Porphyria (AHP- includes AIP, HCP, VP & ADP). moderated by Mayra Martinez and Ginger Davis, both living with Acute Intermittent Porphyria (AIP), who bring lived experience, empathy, and care to every conversation.

Monthly | For CEP & HEP patients and caregivers! Connect with others who understand what you’re going through. Hosted by Justin.

Weekly | Join this weekly Connect UP for people living with Acute Hepatic Porphyria (AHP- includes AIP, HCP, VP & ADP). moderated by Mayra Martinez and Ginger Davis, both living with Acute Intermittent Porphyria (AIP), who bring lived experience, empathy, and care to every conversation.

Monthly | For cutaneous porphyria patients and caregivers! Connect with others who understand what you’re going through. Hosted by Candace.

Weekly | Join this weekly Connect UP for people living with Acute Hepatic Porphyria (AHP- includes AIP, HCP, VP & ADP). moderated by Mayra Martinez and Ginger Davis, both living with Acute Intermittent Porphyria (AIP), who bring lived experience, empathy, and care to every conversation.

Monthly | Join us for a special Connect Up centered on prayer, reflection, and spiritual support, led by Shawn Willis. This gathering offers a peaceful space to come together, share intentions, and find comfort in community. Whether you’d like to pray, listen, or simply be present, all are welcome.

Monthly | You're invited to a special Connect Up for men living with Acute Hepatic Porphyria (AHP- includes AIP, HCP, VP & ADP), a supportive and confidential space created to connect with others who understand the unique challenges of living with AHP.

Monthly | For all those with a loved one with porphyria. Whether you are a parent, partner, sibling, child or friend, supporting a someone with porphyria can be hard. Connect with others who understand your journey.

Weekly | Join this weekly Connect UP for people living with Acute Hepatic Porphyria (AHP- includes AIP, HCP, VP & ADP). moderated by Mayra Martinez and Ginger Davis, both living with Acute Intermittent Porphyria (AIP), who bring lived experience, empathy, and care to every conversation.

Join us for this special Connect UP for anyone who has experienced paralysis because of their acute hepatic porphyria.

Weekly | Join this weekly Connect UP for people living with Acute Hepatic Porphyria (AHP- includes AIP, HCP, VP & ADP). moderated by Mayra Martinez and Ginger Davis, both living with Acute Intermittent Porphyria (AIP), who bring lived experience, empathy, and care to every conversation.

Weekly | Join this Connect UP for people living with Acute Hepatic Porphyria (AHP- includes AIP, HCP, VP & ADP). moderated by Mayra Martinez and Ginger Davis, both living with Acute Intermittent Porphyria (AIP), who bring lived experience, empathy, and care to every conversation.